Individuals with Intellectual and Developmental Disabilities Talk About Health
Stories can change beliefs and alter perspectives.
By sharing the lived experiences of individuals with intellectual and developmental disabilities (IDD) in their own words, the PATH-PWIDD project seeks to inform and educate health care providers and caregivers who work with them. These narratives show the importance of friendships, hobbies, and interests in maintaining good health. They provide a glimpse into their active lives, of which an IDD diagnosis is but a small part.
Understanding their full lived experiences can help providers provide better care to patients with IDD. When combined with systemic and educational changes, these narratives can transform how healthcare professionals treat people with IDD and improve the health outcomes they experience.
Advocates and Advocacy
Members of the Advocate Advisory Committee talk about their passion for advocacy, and provide advice to individuals with IDD who are interested in advocating for their community.
Meet Thomas and learn about his approach to health and advocacy. CW: discussion of rape.
Meet Chuy and learn the importance of telling your story and connecting with the community.
Meet Dee, and learn how advocacy impacts her life and gives her the freedom to use her voice.
Meet Suzen, and discover how she encourages people with disabilities to participate in sports. Suzen also talks about how health care providers can improve their ability to work with people with disabilities.
Actress, advocate, and speaker Bridget discusses the importance of good health and regular medical care.
Why Good Health is Important
We asked some people with IDD what they do to stay healthy and why good health is important to them. Here are their answers in their own words.
Meet Anthony and learn why good health is an important part of his life.
Meet Tabatha and find out how she takes care of her health.
Meet Steve and learn how relaxation and self-expression are important parts of his health.
Meet Joe and learn how people with IDD might need extra help staying healthy.
Meet Edwin and hear him talk about the importance of his family.
Direct Support Professionals (DSPs) and Caregivers
Direct Support Professionals (DSPs) and caregivers talk about their experiences working with individuals with intellectual and developmental disabilities.
Marcos Herrera talks about his work with individuals with developmental disabilities, including wellness practices, meditation, and exercise. He discusses the importance of motivation and advocacy, as well as the benefits of working as a team.
Liz, a direct service provider (DSP), discusses her work with individuals with intellectual and developmental disabilities. She talks about the daily work of being a DSP and the importance of treating those in her care with respect.
Jim talks about his experiences raising a child with developmental disabilities. He talks about the care his son is receiving in his residential facility and the importance of working with the staff and direct service providers, whom he considers part of his son’s family.
Marion “Barney” Barnhart describes his experiences working in a group home. As the person who prepared the meals for residents, he became interested in nutrition and helped residents learn about nutritious foods and healthy eating.